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Posts Tagged ‘there goes my hero’

The Bone Marrow Registry and Why Diversity Matters

With every passing 120 seconds a person in the U.S. is diagnosed with a blood cancer. Many people look to the National Bone Marrow Registry when in need of a transplant, but many people are looking at this list and seeing a huge problem.   Minorities are greatly underrepresented on the bone marrow registry. 67%…

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Letter from the Chairman, Winter 2016

Letter from the Founder and Chairman of the Board, Erik Sauer Dear supporters, It’s been seven years since I started thinking about creating a foundation that would do for other leukemia patients what my family and friends did for me. A year after my transplant, I considered myself so lucky that saying “Thank you” seemed…

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Art Valenzano Bone Marrow Donor Registry Drive

Register as a bone marrow donor in memory of Monsignor Art Valenzano.  Sunday, March 13, 2016 1:00pm – 4:00pm Knights of Columbus Hall, 1338 Hull St. Baltimore, MD 21230      Monsignor Arthur F. Valenzano was the rector of Baltimore’s Basilica of the Assumption when he passed away from leukemia in September 2015. He had battled the disease since…

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Join for Joe!

  Next week, Loyola Blakefield will host their 7th annual Join for Joe bone marrow donor registry drive.  The drive was started for Loyola student Joe Gorman, who passed away from leukemia in 2011 at the age of 15 after battling for three years. There Goes My Hero is so proud to partner with the…

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Partnering with #JennStrong and the Ravens

In March of 2014, sports reporter Nestor “Nasty” Aparicio’s wife Jenn was diagnosed out of the blue with leukemia, just like some 50,000 people each year in the United States. Jenn has an extremely rare form of leukemia that has characteristics of both lymphoblastic and myelogenous leukemia, and the hope is that a bone marrow…

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Words of Hope – The Fringe Benefit of RSV

March 2009 After enduring the RSV treatment in March, and mentally getting over being hospitalized for another 5 days, I was back at home beginning to recover again.  There was one  fringe benefit to having the RSV.  When I came to Hopkins for out patient treatment, I had to be quarantined.  This meant I had my own personal room, which was larger and…

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Words of Hope: The RSV Challenge

February 2009 Recovery into the beginning of January had been very promising.  My blood counts were on the rise and my body was acclimatizing to Isabel’s bone marrow.  I was having the requisite amount of graph versus host disease which was presenting itself as a rash over 90% of my body.  As I’ve said before,…

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5th Year Anniversary

In 2008, I was diagnosed with Acute Leukemia.  I was told my singular option for survival was a bone marrow transplant.  I received the transplant in November, 2008; 5 years ago now.  I met terrific friends through that experience; doctors, nurses, other patients and, of course, Isabel my donor from Germany.  For years, my patient friends…

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Preamble to HeroPalooza

I have had a challenging and rewarding week that will culminate tomorrow at Hero Palooza.   I spent Saturday and Sunday with CAM and his family at Hopkins as he continues his battle.  I also got to meet a new friend face to face Saturday on “the unit” at Hopkins, VG.  I have been speaking with her…

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Words of Hope – FLAM

Sept 2, 2008 August 2008 was one of many difficult months, I had begun my 2nd round of treatment after my relapse.  I needed an experimental chemo treatment called FLAM to achieve my first remission.  FLAM was a difficult experience.  Because I had relapsed, I needed a different treatment and had to start the whole…

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