Posts by Stephanie Cupp
Am I In The Bone Marrow Registry Already?
Do you have a vague recollection of attending an event years ago and signing up for something related to blood cancer? You are not alone. At every drive we host, at least one person expresses the sentiment that they thought they joined the bone marrow registry but they are not quite sure. To join the…
Read MoreA Look At Rare Blood Diseases
Rare Disease Day is held annually on the last day of February in an effort to raise awareness for rare diseases, improve access to treatment, and increase medical representation. In honor of Rare Disease Day, There Goes My Hero wants to take a closer look at rare blood disorders that affect thousands of patients and…
Read More5 Ways To Self-Care During Quarantine
Self-care refers to any action taken to benefit your mental, physical, and emotional well-being. Whether you’re recently diagnosed, undergoing treatment, or a survivor of blood cancer, many individual’s feel as though their life is suddenly out of their control. The demands and restrictions of cancer can lead to feelings of frustration and helplessness. Self-care is…
Read MoreCelebrating the Holiday Season With Blood Cancer During COVID
Holidays are a time of celebration, but they can prove difficult for blood cancer patients undergoing treatment, especially when adding COVID to the mix. To make things a little easier for everyone, we have compiled a list of helpful tips to help blood cancer patients and their families through the end of 2020.
Read MoreBenefits of Participating in Virtual Races
There is no shortage of benefits when it comes to participating in races. It is a great way to stay active throughout the year while working on your personal best. Unfortunately, in-person races are one of the many events that have been postponed indefinitely due to COVID. Luckily, runners and walkers have a wonderful new…
Read MoreInterview with Andrew’s Laughing Gas
Andrew Mercier was diagnosed with Leukemia 2 days before his 10th birthday. This came as a surprise to his family and friends, as he had always been high energy, adventurous, and active kid. He was known to many as the class clown, and thoroughly enjoyed that title. He loved to make people laugh, creating his…
Read MoreA Slow Return to Business As Usual
On March 11th, There Goes My Hero hosted what would be our last in-person bone marrow registry drive before the global pandemic hit. Since then, we have continued our mission by hosting over a dozen virtual bone marrow drives. This allows us to continue adding potential life-savers to the registry, but our virtual impact is…
Read MoreWhat To Expect After Donating Bone Marrow
You might be considering donating bone marrow to someone in your family, in your community, or even someone you have never met before. There are two methods of donation: peripheral blood stem cell donation (PBSC) and bone marrow donation. Both methods are straightforward outpatient procedures, but you will still experience some side effects. Recovery From…
Read More(Lack of) Diversity on the Bone Marrow Registry
Every three minutes, a person is diagnosed with a blood cancer or blood disorder. This includes diseases like sickle cell anemia and multiple myeloma, which disproportionately affect the African-American community. For many patients suffering from blood cancers, a bone marrow transplant is the best chance for survival. Only 30% of patients are able to find…
Read MoreHelping Children Cope When A Sibling Has Blood Cancer
When a child is diagnosed with blood cancer, it can affect every member of the family. This is true for children with a sibling suffering from blood cancer, especially if they are young and do not fully understand the extent of what is happening around them. Parents and family members can support children through this…
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