February 2009 Recovery into the beginning of January had been very promising.  My blood counts were on the rise and my body was acclimatizing to Isabel’s bone marrow.  I was having the requisite amount of graph versus host disease which was presenting itself as a rash over 90% of my body.  As I’ve said before,…

Read More

January 5th 2009 So we rolled over into my second year of treatment.  To summarize at this point, I spent the beginning of 2008 sick with headaches resulting from an undiagnosed illness. This was followed by a leukemia diagnosis in May and then 6 months of intensive treatments culminating in a bone marrow transplant on 11/18/08.…

Read More

December 18th, 2008 Today, I was released from prison.  Not that I don’t appreciate Johns Hopkins, but when you are hooked up to IV all day, everyday, for 35 days and live in a 10×12 room, you are woken up every 4 hours for vital checks, you start to understand what it might feel like to…

Read More

Nov. 18th, 2008: Today, I had a bone marrow transplant.  It would prove to be the solution for a very big problem, an Acute Leukemia diagnosis.   The road to the transplant was long and tricky.  For a time, it seemed like it never would happen.  The maladies of disease and treatment mounted and some of the road…

Read More

Towards the end of the October I was writing about my donor being lost due to bronchitis and my liver starting to fail on top of three intensive rounds of chemotherapy.  The photo in this post is one that we have in our bedroom.  Not many people have seen it.   At a glance, it is a fairly benign…

Read More

Oct 2008 versus Oct 2013 As I mentioned in the September blog, it was a weird time of recovery.  I had received the FLAM treatment in August and spent September getting better and getting ready for a bone marrow transplant.  I was visiting Hopkins everyday and having my blood “checked”.  In September I was receiving blood transfusions and…

Read More

In 2008, I was diagnosed with Acute Leukemia.  I was told my singular option for survival was a bone marrow transplant.  I received the transplant in November, 2008; 5 years ago now.  I met terrific friends through that experience; doctors, nurses, other patients and, of course, Isabel my donor from Germany.  For years, my patient friends…

Read More

I have had a challenging and rewarding week that will culminate tomorrow at Hero Palooza.   I spent Saturday and Sunday with CAM and his family at Hopkins as he continues his battle.  I also got to meet a new friend face to face Saturday on “the unit” at Hopkins, VG.  I have been speaking with her…

Read More

September was a strange time.  I had endured two rounds of induction chemotherapy and the second version FLAM, and it had put me into a solid remission.  After 21 days inpatient for the FLAM treatment, I was home for the month of September, except for the daily visits to Hopkins to check my blood and…

Read More