Partnering with #JennStrong and the Ravens

In March of 2014, sports reporter Nestor “Nasty” Aparicio’s wife Jenn was diagnosed out of the blue with leukemia, just like some 50,000 people each year in the United States. Jenn has an extremely rare form of leukemia that has characteristics of both lymphoblastic and myelogenous leukemia, and the hope is that a bone marrow…

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Words of Hope – The Fringe Benefit of RSV

March 2009 After enduring the RSV treatment in March, and mentally getting over being hospitalized for another 5 days, I was back at home beginning to recover again.  There was one  fringe benefit to having the RSV.  When I came to Hopkins for out patient treatment, I had to be quarantined.  This meant I had my own personal room, which was larger and…

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Words of Hope: The RSV Challenge

February 2009 Recovery into the beginning of January had been very promising.  My blood counts were on the rise and my body was acclimatizing to Isabel’s bone marrow.  I was having the requisite amount of graph versus host disease which was presenting itself as a rash over 90% of my body.  As I’ve said before,…

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5th Year Anniversary

In 2008, I was diagnosed with Acute Leukemia.  I was told my singular option for survival was a bone marrow transplant.  I received the transplant in November, 2008; 5 years ago now.  I met terrific friends through that experience; doctors, nurses, other patients and, of course, Isabel my donor from Germany.  For years, my patient friends…

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Preamble to HeroPalooza

I have had a challenging and rewarding week that will culminate tomorrow at Hero Palooza.   I spent Saturday and Sunday with CAM and his family at Hopkins as he continues his battle.  I also got to meet a new friend face to face Saturday on “the unit” at Hopkins, VG.  I have been speaking with her…

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Words of Hope – FLAM

Sept 2, 2008 August 2008 was one of many difficult months, I had begun my 2nd round of treatment after my relapse.  I needed an experimental chemo treatment called FLAM to achieve my first remission.  FLAM was a difficult experience.  Because I had relapsed, I needed a different treatment and had to start the whole…

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Words of Hope – Finding My MUD

July 8th, 2008-I left you with a teaser at the end of the last blog; Hershey Park, Blood Clots and Relapse…  I am going to prolong the wait on that discussion as it happened a little later in July, 2008.  This period in 2008 was somewhat uneventful in the grand scheme of this process, though…

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Words of Hope – 24 Days in the Hole

June 24th, 2008: Sorry for the long lag in posts.  The lag in time coincides with many long, boring days in the hospital recovering.  I was released from the hospital after spending 24 days inpatient from May 27th through June 19th.  Those 24 days were chock full of little issues; fevers, rashes, GI issues, etc…  I…

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Words of Hope – Hotel Johns Hopkins

June 7th 2008: I just finished my first round or “induction round” of chemotherapy. It was a cocktail of 3 different types of chemo in various doses, spread over 8 days. The only name I remember is Cytarabine. The reason I can remember it is because of the nickname it has, Cy-terrible. This is because…

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Words of Hope – Let's Shave Our Heads Together

May 27th 2008: I had spent the previous two weeks digesting a leukemia diagnosis with my family, while also adding to the family with the birth of Joseph. Joseph, my red headed wonder boy was born into a “s _ it storm” for lack of a better term. Ian, my oldest, was 4.5 and he and…

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